M.E, Mercury Poisoning, or Lyme Disease? How to Live an Empowering Life as A Medical Mystery.
Living with any chronic debilitating illness is challenging but living with a list of chronic symptoms and conditions that leave the medical and holistic field baffled comes with another set of challenges. Especially when you are offered no medical treatment or support.
With so much misinformation about the suspected causes of my illness, I was labeled a medical mystery.
At the young age of 19, I came down with a strange viral type illness after a retiring dentist put mercury up my root canal. I was a vibrant young woman with two jobs, who loved to walk, dance and sing. Almost overnight I struggled to walk a few hundred yards, suffered intermittent periods of paralysis, exhaustion, muscle pain, gastrointestinal issues and mysterious cognitive challenges. Most people around me presumed it was all in my head especially the medical profession.
I had to change jobs several times because of the challenges I faced which included strange allergies, spatial awareness, and a sight issue. I actually thought I was going mad. Naturally, I took on what everyone else thought – that it was all in my mind.
I tried to push through with a positive mindset and went to college to train as a vocalist. I took on several jobs to pay my way through college, and ended up so ill, that I had to go back and live with my parents. I spent a large part of the next 7 years predominately housebound and bed-bound.
Over the next 25 years, I truly became a medical mystery.
Diagnosed with M.E./CFS, I faced all sorts of discrimination, neglect, and miseducation from the medical profession and benefits system. It was only when they discovered I was suffering from threatened eye loss; an unexplained hole at the back of my eye, that they began to take me seriously. Then just a few years ago I came across a symptom checker for chronic Lyme disease – would you believe I had over 120 symptoms. Testing and treatment for over thirty years of untreated chronic Lyme disease is not straightforward. So, I am still not 100%. Was it the M.E., Lyme or was it the Mercury Poisoning? Or was it a combination of them all?
I would like to stress here that I believe it’s how we react to challenges that will determine the outcome of our lives.
I chose to become empowered as much as I could. Luckily for me after a lot of self-discipline, determination, and knowledge I got a large part of 16 years back. And got to pursue something I had developed a passion for. I felt alive again. Now I still had very limited energy, stamina, and mobility and I needed lots of rest – usually about 14 hours a day. I had to balance and plan my days out very carefully.
Although I had my health back, I was not very employable, but I had a purpose, gifts, and skills I wanted to share. So, I became a self-employed healer, therapist, and coach, something I felt my heart and soul called me to do, teaching all sorts of stress management, personal development and holistic well-being to all ages in the health, education and charity sector.
But after a life-threatening episode of sepsis several years ago, I started to develop extreme light and noise sensitivity. This triggered a complex movement disorder leaving me with balance problems and very little control over my body when I went outside or was exposed to specific sounds. I also developed a lot of fine motor challenges similar to Parkinson’s. Due to this neurotoxicity, I became housebound again.
I was told by neurologists nothing could be done and that I would just have to learn how to live with it. Over the years I have taken what most of the medical profession says with a pinch of salt. I’m a medical conundrum for them, and they don’t have the solution yet.
But my life journey has taught me how to become empowered, to be strong, and to carry on.
I have adapted my life to fit in with what my body allows me to do. I have used a total-holistic approach to my health for 25 years. Along with a healthy diet my present support includes CBD paste, magnesium oil, and “On-Guard,” an essential oil blend, and I feel that I am getting stronger.
It doesn’t matter how long you have been ill or how modest an income you have. There are always little things you can do on a daily basis to support your health and wellbeing.
Here are 6 Ways to Live an Empowering Life as A Medical Mystery:
Meditation helps you access that inner peace, calm, stillness no matter what is going on externally or physically in your body.
Healthy Eating –
Gut absorption is a huge problem in many of today’s health challenges. Juicing flood your body with lots of superfoods and nutrients. But even eliminating sugar as it feeds bacteria and viruses is a great start.
Hydration is a must for optimal health as it is required to flushes out toxins from the body.
An attitude of gratitude helps change our perspective and raise our vibration.
Plan and pace out your days with plenty of rest periods. Imagine your energy as a bank account that you have withdrawn on, you need to fill up to a healthy balance before you spend anything.
Many of my biggest shifts in healing started when I let go. Don’t get too caught up in how your healing should happen. Let go and let God.
My story is not too different from anyone else’s extreme health challenges. You may feel alone at times, you may lose hope at times, but your situation CAN improve. Simply take one step and one moment at a time in a state of being.
Allow your thoughts to flow with what you CAN DO rather than what you can’t do.